|Titre :||Patient education for children with interstitial lung diseases and their caregivers: A pilot study (2019)|
|Auteurs :||Mandy Niemitz, Auteur ; Miriam Schrader, Auteur ; Julia Carlens, Auteur ; ET AL., Auteur|
|Type de document :||Article : texte imprimé|
|Dans :||Patient Education and Counseling (Vol. 102 n°6, Juin 2019)|
|Article en page(s) :||pp. 1131-1139|
Patient education in children with rare chronic diseases like children’s interstitial lung disease (chILD) remains a challenge.
To develop and evaluate a component-based educational program for individual counselling and to improve patients’ and caregivers’ self-efficacy and treatment satisfaction. Furthermore, to create chILD-specific educational material and assess physicians’ satisfaction with the intervention as well as patients’ health-related quality of life (HrQoL).
The study was conducted in two German centers for pediatric pulmonology, as a single-group intervention with pre-post-follow-up design.
Participants (N = 107, age: M = 7.67, SD = 5.90) showed significant improvement of self-efficacy (self-report: t = 2.89, p
The chILD education-program is a promising strategy to improve patients’ and their parents’ self-efficacy and treatment-satisfaction. Specific effects of the intervention need to be determined in a randomized controlled trial.
Healthcare providers managing pediatric patients with chILD, may choose to use a patient education-program specifically tailored to the needs of chILD patients and their families, such as the program described here, which is the first of its kind.
|RESO P.12||RE65681629||Bulletin||RESOdoc||Consultation sur place|