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Burden or benefit? Effects of providing education about and the option to request additional genomic findings from diagnostic exome sequencing: A randomized controlled trial

Christine Rini, Auteur ; Myra I. Roche, Auteur ; Feng-Chang Lin, Auteur ; Ann Katherine M. Foreman, Auteur |

Dans Patient Education and Counseling (Vol. 104 n°12, December 2021)

"Objective Many people prefer to learn secondary or “additional” findings from genomic sequencing, including findings with limited medical actionability. Research has investigated preferences for and effects of learning such findings, but not p[...]

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